Family Support Program
If you have found your way to this web page you are most likely the parent of a child with a brain tumor. You are in a very difficult place, and we want you to know that you are not alone.
At the PBTF, we provide resources for families and fund research into the causes of childhood brain tumors. This research will one day lead to a cure for this terrible disease.
As you travel the road to survivorship for your child, you will need to not only deal with your child's medical care, but also with your other children and your relationship with your spouse.
It's essential that parents learn the basic facts about brain tumors in children and begin to ask questions about their child's brain tumor. We've prepared a series of basic booklets on childhood brain tumors to give you medical questions that you should be asking about your child's tumor and treatment, as well as basic information about the most common childhood tumors.
Our booklets, many of which are also available in Spanish, are available at no charge to parents, medical and social work professionals, and educational institutions.
Booklets in English
- Questions to Ask Your Medical Care Team When Your Child Has a Brain or Spinal Cord Tumor
- Basic Facts About Pediatric Brain and Spinal Cord Tumors
- Basic Facts About Medulloblastoma
- Basic Facts About Glioma
- Basic Facts About Astrocytoma
- Basic Facts About Juvenile Pyloctic Astrocytoma
- Basic Facts About Ependymoma
- Basic Facts About Non-Malignant Brain Tumors
- Basic Facts About Late Effects of Pediatric Brain Tumors and Treatments
Ofrece folletos informativos en Español
- Preguntas para los Integrantes del Grupo Médico si Su Hijo Tiene un Tumor Cerebral
- Información Básica Sobre los Tumores Cerebrales y de Médula Espinal Pediátricos
- Información Básica Sobre el Meduloblastoma/TNEP (Tumor Neuroectodérmico Periférico)
- Información Básica Sobre el Astrocitoma Pilocítico Juvenil
- Información Básica Sobre el Astrocitoma
- Información Básica Sobre el Ependimoma
- Información Básica Sobre el Glioma
Order pediatric brain tumor booklets
Informed Parent and Survivor Internet Conference Series
We also have a series of presentations on important topics of concern for parents and survivors
of pediatric brain tumors. The outreach of this program is international. The broadcasts are available on this website and on CD. Order here.
Patient Family Support Program
Each day families contact us for support. In an effort to serve them, our staff includes a social work professional who provides emotional and educational resources. Email our Family Support Program Director.
College Scholarship Program
We launched our scholarship program in 2002 to assist families devastated by the cost
of medical care to save the lives of their children. Since that time,
we've awarded more than 900 scholarships for brain tumor survivors to attend
vocational schools, community colleges and universities across the
United States.
Ride for Kids® Celebration of Life Program
Our Ride for Kids® program brings motorcyclists together with patient families in their community. In addition to being a significant source of funding for the PBTF, the program has raised national awareness about childhood brain tumors.
Each Ride for Kids® event includes a Celebration of Life program, which serves as a support group for patient families. Survivors, siblings and their parents are the guests of honor for the day as they interact with other families. This program honors survivors as well as those who are no longer with us. Learn more.
